Hormone-Refractory Prostate Cancer

or Castrate-Resistant Prostate Cancer

Understanding    Treating    Maintaining Quality of Life

Home
What's New
News
What To Do First
Patient's Guide
E-mail Support Group
Proven Treatments
Potential Treatments
Managing Symptoms
Diagnostic Tests
Information Resources
FAQ
Support HRPCA.org


 

E-MAIL SUPPORT GROUP

PURPOSE OF THE SUPPORT GROUP

The HRPCa E-mail Support Group is an internet forum for men with diagnosed hormone-refractory prostate cancer and for their families and caregivers. We have found that once a man is diagnosed with HRPCa, he is fighting a different battle than that waged against the earlier stages. This forum allows families fighting HRPCa to share their experiences candidly with others similarly committed.

Members of this group recognize the importance of (1) understanding thoroughly the therapies that have been found effective and their side effects; (2) searching out new therapies that have the potential of helping in the fight against HRPCa; and (3) understanding the medical science surrounding this stage of the disease and the relevant therapies.

This is a small, highly focused group, dedicated to the serious search for better answers. It is a working group actively looking for information and treatments that will lead to slowing the disease and extending quality survival.

Each participant is considered a contributor to the group effort. At this stage of the disease, each individual has experienced a number of treatments and side effects, and he has gathered knowledge and experience that may be of use to others.

It is not the purpose of this group to withdraw from the community of PCa fighters. Any information of general interest that is developed through the group efforts is posted on this web site, which is open to all. We also post this information regularly to the other lists that deal with all issues surrounding Pca.

HOW TO JOIN THE GROUP

If you have an up-to-date prostate cancer digest (PCD), email a copy to Marty Magid with a request that you be subscribed by clicking on the following link: Contact the HRPCa Association. If there is any question about the diagnosis of hormone-refractory prostate cancer, he will contact you. If you do not have a PCD or know how to prepare one, Marty will work with you to prepare it.  An example PCD is located in chapter 6 of the booklet.

A very useful and recommended method of keeping your prostate cancer related treatments and responses to treatment is the Multigraph Plotting provided by PCREF (Prostate Cancer Research and Education Foundation).  The instructions for creating a chronological digest are at http://www.pcref.org/instruction.php and the "Smart Chart instructions are at http://www.pcref.org/medsmartchart.php.

Your pc digest will be re-posted to the support list, so that the members know where you are in your fight against Pca. All members are encouraged to comment on the pc digest wherever they have applicable and meaningful experience to share with you.

By reading some of the posts you will quickly see the direction of the group, and you are encouraged to participate with your own questions, comments, and research.

[Top]

 

This information related to HRPCa, AIPC, and/or CRPC is provided for educational purposes only and does not replace or amend professional medical advice. Unless otherwise stated and credited, the content of this website is by and the opinion of and copyright © 2001-2013 Howard Hansen and/or HRPCa Association, Inc.  All Rights Reserved.  Our policy regarding privacy, right to reprint and contact information are at About Us. We are a 501(c)(3) not-for-profit public charity.